Kyler Updates

A journal of Kyler's fight against cancer

Tuesday, August 15, 2006

Chemo No. 1

Chemo #1

It has been one week since Kyler’s first chemo treatment. He handled it surprisingly well. The nausea was controlled well and he did not throw up at the hospital. His blood work going into his first round of chemo was very strong. We were thankful for that. We were expecting a two-day stay at the hospital, but when we got there we were informed that, barring any unforeseen complications, it would only be a 24-hour stay. He did so well that they were able to release us even earlier.

Kyler’s weekly Tuesday visit with his pediatric oncologist went well today. He was able to remain calm while they accessed his port. His blood work looks good still (especially considering he had chemo last week). However, he has lost 1.5 pounds. We can’t seem to get that boy to gain weight. It’s hard to look at him sometimes because he is so gaunt. As of today he weighs 30 pounds. I know toddlers that weigh more than that and he is starting kindergarten next week.

Tonight he was having a hard time making himself eat half of a piece of toast with cashew butter on it. “I’m never going to like food again”, he said. That was hard to hear. Nothing sounds good to him and he is having a hard time getting anything of substance in him. If we push for the extra bite or two he often vomits up everything we’ve been trying so hard to get in him. It’s very stressful.

He has been understandably tired this last week. We are hoping that both energy levels and appetite continue to pick up.

On a positive note, Kyler started reading some very simple books today. We were all very excited about it. I could tell Kendrick was proud of him. He seemed almost just as excited as Kyler. “He’s not even in kindergarten yet”, he would say or, “You’ll probably be the smartest kid in your class, Kyler.” That was fun to see Kendrick make a big deal over his brother.

The weight and appetite issues are the biggest ones for us right now. He has five more weeks till his next chemo treatment. We could also use your prayers for his adjustment to going to school during treatment. I can only imagine how odd it might feel to try and go to school and have people ask about your hair being gone or why you missed a few days of school. All the kids will quickly find out what’s going on and we are hoping they will all be supportive and kind. We are also asking God to help us to be able to work closely with the teacher to help him do his best and find the balance between keeping him challenged without over-taxing him.

With much gratitude,

Darrell Haskins

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