A "Hairy" Weekend
This weekend brought one of the more 'in-your-face' realities of what's happening with Kyler. Almost all his hair fell out over the course of two days. He's fine with it. It makes him look like his uncle Scott. Sandie, on the other hand, was not so calm about it. It was very sad to see that happen. It actually made him look like a cancer patient. We aren't in denial about what is happening but sometimes it sinks in even further with different situations. Sometimes random things really hit home and we never know when that's going to happen so it takes us off guard.
We must thank you for your prayers for our courage and boldness in making the necessary moves to try and get the treatment time changed as well as say 'no' to the increased radiation dosage. The conversation with our radiation oncologist went very well. He necessarily expressed his concern but was willing to do as we requested. I was very nervous before hand. We feel very comfortable with our decision.
I also sent a letter to the hospital administrator, medical director, and other people expressing our dissatisfaction with the treatment time. I hope we will be able to apply adequate pressure to get things changed. We are not trying to be adversarial or belligerent but simply do what we think is best for our son.
More good news – Kyler has gone almost a whole week with going in for treatment with no whining or crying and is actually participating in the preparation for administering the ‘sleepy medicine’.
Tomorrow we will find out what his blood counts are. If they have continued to drop and his energy levels are low we will be looking at a blood transfusion. I’m not sure how I feel about that. It’s someone else’s blood in my son. His body didn’t make it. The tough thing is knowing it is his radiation treatments that are necessitating the possible transfusion.
Please continue to pray for good energy for Kyler and healthy blood counts, good appetite and minimized weight loss, no vomiting and ease in taking the nutritional supplements.
As you continue to pray for us, it is encouraging to hear from you. Thank you for your comments and sharing what God is speaking to you.
Blessings,
Darrell
We must thank you for your prayers for our courage and boldness in making the necessary moves to try and get the treatment time changed as well as say 'no' to the increased radiation dosage. The conversation with our radiation oncologist went very well. He necessarily expressed his concern but was willing to do as we requested. I was very nervous before hand. We feel very comfortable with our decision.
I also sent a letter to the hospital administrator, medical director, and other people expressing our dissatisfaction with the treatment time. I hope we will be able to apply adequate pressure to get things changed. We are not trying to be adversarial or belligerent but simply do what we think is best for our son.
More good news – Kyler has gone almost a whole week with going in for treatment with no whining or crying and is actually participating in the preparation for administering the ‘sleepy medicine’.
Tomorrow we will find out what his blood counts are. If they have continued to drop and his energy levels are low we will be looking at a blood transfusion. I’m not sure how I feel about that. It’s someone else’s blood in my son. His body didn’t make it. The tough thing is knowing it is his radiation treatments that are necessitating the possible transfusion.
Please continue to pray for good energy for Kyler and healthy blood counts, good appetite and minimized weight loss, no vomiting and ease in taking the nutritional supplements.
As you continue to pray for us, it is encouraging to hear from you. Thank you for your comments and sharing what God is speaking to you.
Blessings,
Darrell
| 10:25 PM
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