Changing of the tide

Yesterday while I was with Kyler at the radiation oncologist's office I heard two nurses talking about the logistical changes they will be having make in order to begin treating pediatric patients receiving radiation in the morning. The technicians will have to get there 5:30 AM in order to warm up the machines and be ready to treat at 6:30 AM. There will be some longer hours occasionally and the need to bring in a few people earlier in some cases, but it looks like they will begin treating their first patient July 10th under this new schedule. It is too little too late in our case, but I take a small degree of comfort in knowing that I paved the way for someone else. It was hard not to get angry knowing that someone else was going to reap what I sowed.

We received word this morning that we have been approved by the Make-a-Wish Foundation for a one-week trip to Disney World in Florida! We will stay at a resort called, “Give Kids the World”, a special place for kids with life-threatening conditions to stay with their families. We are so excited. Thanks for your prayers for this quick approval.

Please continue to pray for strength for Kyler as well as Sandie and I. The more we discover what chemotherapy is going to really look like, the less we like it. We are going to do our very best to use the month off between radiation and chemotherapy to help him gain weight, strength, energy, and boost his immune system. The doctors have told us that this last week of radiation could really wipe out Kyler. It’s kind of like it all has been building up and has a cumulative effect on his body.

We love you all. Thanks for loving us and praying for us.