Kyler Updates

A journal of Kyler's fight against cancer

Friday, July 28, 2006

Florida is hot - hot and sticky!

Florida is hot in July – hot and sticky. We knew that going into this trip, but we didn’t really know it till we got there. Humidity does weird stuff to the human body, like make it sweat from zero to saturated in 2.8 seconds flat. Be that as it may, we had a great time in Florida visiting the amusement parks there. We put a few pictures here for you to get the idea.
The boys loved their first limo ride (even though it was 4:00 AM).





The amusement parks were fun, but we couldn’t spend more than four or five hours there before we were melting into our sandals and the boys were moaning like they had just crossed the Sahara without water. I imagined we’d get there when the park opened and stay till the fireworks. It was not to be. We had to pace ourselves a bit so we could actually enjoy the trip. It was hard for me at first because there was so much of each park that we weren’t seeing. Never mind that we were able to go on a lot of rides in a short amount of time because we were able to go right up to the front of the line, there was so much we were missing! We got free tickets to all these parks and it was more than we could possibly do. We learned the art of skimming an amusement park, finding out what was going to be best for us and forgetting the rest.

We did the Magic Kingdom the first day, Epcot the second day, Disney Animal Kingdom the third day, the two Universal Studios parks the fourth day, and tried to go to the Disney MGM Park the fifth day. We didn’t realize the passes to the Disney parks were only for three days so we had to miss the Disney MGM park and we went back to our resort called "Give Kids the World" and spent the day there before going to Medieval Times that night.

The boys loved Give Kids the World. They would have been satisfied to stay there for five days and play. Their favorite part was an interactive storybook in the Castle of Miracles that projected the characters onto a screen on the wall that you could control. I think they also really enjoyed eating ice cream for breakfast one day by order of Santa Claus (it’s Christmas every Thursday there).

We are so grateful to the Make-a-Wish Foundation and Give Kids the World for providing us with such a memorable time together. We couldn't have done it without them. It was truly a magical trip.

The day after we got back from Florida, Kyler had a spinal tap and the following day an MRI. The spinal tap came back clean (Hallelujah!). And today we met with our pediatric oncologist today to look at the MRI, which was also clean! Very good news indeed. Thank you for praying.

Kyler is scheduled to start chemo August 8th. We’re not looking forward to it. They tell us it’s really going to wipe him out. And since he is so little, we does not have a lot of reserve to use while he is not feeling like eating. That has us worried a bit. He has not put on the weight we had hoped so far during this break. We have another week to try and get his body ready.

We are grateful for your continued prayers about his appetite and preparation for his first chemo treatment.

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